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Canada vs. Euthanasia
A Brief to Members of ParliamentCanadians have never equated caring or justice with killing those who may suffer. But recently the killing of a Saskatchewan girl with cerebral palsy has challenged Canada's definition of caring. The case evoked sympathy in many quarters and brought calls to soften Canada's law on "mercy-killing."
Many disabled Canadians fear what the Latimer case portends. Which way are we moving as a country? Toward making every disabled Canadian safe and welcome? Or toward making it easier to dispose of them?
When people are dying from terminal illness, or suffer from chronic or degenerative illness, competent palliative care can bring immeasurable relief. Unfortunately, as many experts have attested, most Canadians do not have good access to palliative care. Parliament must not accept the status quo.
It is time for our political leadership to work energetically to ensure that every Canadian who needs it has access to palliative care. The Canada Health Act should be amended accordingly. As governments discuss the future of health care funding, major support for palliative care should be a top priority. Funding should include the Canadian Palliative Care Initiative.
3. The Doctor-Patient Relationship
Most euthanasia proposals involve a physician ending a patient's life. Yet the medical professions in Canada, the United States and Great Britain have not been eager to conflate caring with killing.
Once doctors are granted the power to kill patients, the impossibility of restricting that power has been amply demonstrated in Holland. The slippery slope theory has been confirmed.
The argument is sometimes made that euthanasia should be treated as an essentially private matter between a patient and their doctor. This argument is problematic from several standpoints. Only a society indifferent to the welfare of patients and the responsibilities of doctors should want to entertain it as a public policy. Killing is an inherently public matter.
The international consensus is strongly opposed to the active termination of sick, disabled and dying persons. Many eminent bodies have examined the issue.
In 1997 the State of Oregon became the first jurisdiction to statutorily legalize assisted suicide. The Dutch experience suggests that it will not be long before the Oregon experiment unravels.
5. Should Changes be Made to the Criminal Code?
Proposals to reduce the criminal offence of euthanasia have been advanced. Some wish to create a new category "compassionate homicide." Such a legal change would be unwise public policy because it is (a) ethically flawed; (b) discriminatory; (c) dangerous to public safety.
Caution is called for concerning proposals to change the Criminal Code in the areas of withholding and withdrawing treatment and the administration of pain relief medication. There is a danger that such changes would bring euthanasia in by the back door.
Contrary to some superficial polls that have been uncritically reported by many media, there is no public consensus in favour of allowing the killing of sick, dying or disabled persons.
A careful, extensive and in-depth poll of British Columbians by EPC revealed a lack of consensus and much misunderstanding about euthanasia itself, yet a clear consensus in favour of an alternative response to suffering. The Canadian euthanasia debate is far from over.
7. Definitions
The Senate Committee's Report has provided helpful definitions of most key terms.
Unfortunately, the Report's definition of the central term - "euthanasia"- is defectively ambiguous. EPC's definition, referring to omissions as well as actions, is more complete.
8. Euthanasia Prevention Coalition BC
The Euthanasia Prevention Coalition of BC is a coalition of organizations and individuals opposing the promotion or legalization of euthanasia.
EPC is deeply concerned about the manipulative haste with which some euthanasia advocates are pushing for legal change. Adeptness at appealing to the fear of suffering is not being matched by zeal for responsible public discussion.
The euthanasia issue raises a question Canadians must face: How do we deal with human suffering? But proposals to legalize the killing of those who suffer do not offer the right answer. Our medical ability to relieve suffering has never been greater than now. Why would we as a society now want to say, Killing is a cure for suffering?
List of Appended Documents Includes links to papers, resources
We have a tradition in Canada of working together to build a caring, compassionate and just society. This tradition has always included cherishing disabled, sick, and dying persons as equal members of our community. We have never equated caring or justice with killing those who may suffer. But recently the killing of a Saskatchewan girl with cerebral palsy has challenged Canada's definition of caring.
Robert Latimer claimed that he took the life of his twelve year old daughter Tracy in order to end her suffering. The case evoked sympathy in many quarters and brought calls to soften Canada's law on "mercy-killing." While convicted of murder, Latimer obtained a rare constitutional exemption which reduced his sentence to one-fifth the mandatory minimum.
But the case evoked other reactions as well. For the mother of a daughter with the same disability as Tracy Latimer, euthanasia is about abandonment rather than caring.
"Love is what it takes to wake up with new energy every morning to give care and comfort to a child who needs it and who is absolutely dependent on her parents. Love bears all, love endures all, love never gives up hope. What happened to Tracy Latimer was not an act of love. She was killed the day love ran out."
- Rita Wolfe
In fact many disabled Canadians fear what the Latimer case portends:
"Tracy's death is not about mercy. Her murder is about bringing harm to people who are seen as less valuable, and masking it in pleas of mercy." - People First of Canada
"[The court] is lending support to the notion that the killing of a person with a disability is different than the killing of any other person." - Hugh Scher, Council of Canadians with Disabilities
"People with disabilities are fearful for their lives." - Pat Boehm, Saskatchewan Voice of People with Disabilities.
Which way are we moving as a country? Toward making every disabled Canadian safe and welcome? Or toward making it easier to dispose of them?
2. Palliative Care: The Caring Response"Life, even a life full of suffering, is precious. Taking it, even for the best of motives, is reprehensible. If we do not believe that, then we believe nothing." - Editorial, Globe and Mail
Canadians have always accepted that a person who suffers due to unremedial disability or illness has a moral claim on our care and compassion. As a society we have made great strides in providing medical treatment and human support for those who suffer.
When people are dying from terminal illness, or suffer from chronic or degenerative illness, competent palliative care can bring immeasurable relief. Palliative care may be defined as "care aimed at alleviating suffering - physical, emotional, psychosocial, or spiritual - rather than curing." The biggest fears that dying people have are pain, loneliness, and loss of dignity. Palliative care responds to all three. As a result, any desire for suicide or euthanasia is normally prevented or removed.
Unfortunately, as many experts attested before the Special Senate Committee on Euthanasia, most Canadians do not have good access to palliative care. The Committee learned that such care is (a) unevenly distributed across Canada; (b) insufficiently funded; (c) often poorly coordinated; (d) lacking in sufficient numbers of trained professionals; (e) seriously underprovided in medical training programs; (f) in need of further research in pain management.
The Committee called for "universal access to competent and effective palliative care." It urged governments to "make palliative care programs a top priority in the restructuring of the health care system." But is anyone listening? The glacial pace of delivering palliative care to those who are suffering is perplexing and frustrating, and only fuels demand for euthanasia.
Parliament must not accept the status quo. When people are suffering and need help, it is no answer merely to reject euthanasia. It is time for our political leadership to work energetically to ensure that every Canadian who needs it has access to palliative care.
The Canada Health Act should be amended accordingly. Indeed, should not failure to provide palliative care be a more serious matter than extra-billing or a waiting list for cataract removal?
As governments discuss the future of health care funding, major support for palliative care should be a top priority. Funding should include the Canadian Palliative Care Initiative (see Tab 2).
Competent care is the right answer to the problem of suffering. But delivering the goods takes hard work.
3. The Doctor-Patient Relationship: Killing as a Cure?
"The very soul of medicine is on trial." - Willard Gaylin, M.D. et al.
Most euthanasia proposals involve a physician ending a patient's life. Do Canadians want doctors to be killers for hire (no doubt a suitable euphemism could always be found)? Or is our idea of a good doctor still one who often cures, always cares and never kills? Hippocrates set Western medicine on a historic course, one that distinguished healing from killing. In our view, this is no time for physicians to again dabble in the poison arts.
The medical professions in Canada, the United States and Great Britain have not been eager to conflate caring with killing. The Canadian Medical Association opposes physician involvement in euthanasia and assisted suicide.
"The medical profession will not tolerate being put in a position to judge the value of the lives of the patients we are trained to heal, comfort and care for..." - Dr. Nancy Dickey, American Medical Association
Of all doctors, moreover, those closest to the dying - palliative care physicians - are the most resistant to euthanasia.
It is also curious that those closest to death are less interested in euthanasia than others. It is as if the perception of another's suffering is more of a problem than the reality of one's own suffering. We should surely be guided more by the experience of those who suffer than by uninformed value judgments about other people's quality of life.
Once doctors are granted the power to kill patients, the impossibility of restricting that power has been amply demonstrated in Holland where voluntary euthanasia was allowed and then only in cases of terminal illness. Information contained in a 1991 Dutch government study showed that most physician-involved deaths were not voluntary. Moreover, a 1997 study concluded that "virtually every guideline set up by the Dutch ... has failed to protect patients or has been modified or violated." The slippery slope theory has been confirmed.
"The Netherlands has moved from assisted suicide to euthanasia, from euthanasia for people who are terminally ill to euthanasia for those who are chronically ill, from euthanasia for physical illness to euthanasia for psychological distress, and from voluntary euthanasia to involuntary euthanasia (called 'termination of the patient without explicit request')." - H. Hendin, M.D.
"A matter between a patient and their doctor"?
The argument is sometimes made that euthanasia should be treated as an essentially private matter between a patient and their doctor. This argument is problematic from several standpoints.
1. It asserts to become public policy. If society had never enacted laws against patient killing, it would be possible to conceive of euthanasia as a purely private matter. In the present context, if legalized it would always remain a foundationally public matter.
2. The argument implicitly asks society to approve killing as a solution to suffering, and sanctions the role of doctor as killer. The "privacy" of the doctor-patient relationship would thus, from the beginning and under public auspices, be morally skewed in favour of euthanasia.
3. One of the parties in the relationship is by definition weak and vulnerable because of illness and suffering, thus deserving of safeguard measures. Yet enactment of safeguards would involve the public in the relationship.
4. The argument falsely assumes that euthanasia could remain totally voluntary. Once society has approved killing as a solution to suffering, there would be a tendency to apply that principle to patients in general, in their best interests. Euthanasia would especially be applied to noncompetent patients. The net result: public intervention would be required.
The idea of making euthanasia a purely private matter between a patient and doctor is a myth, but could hardly become a coherent and workable social reality. Only a society indifferent to the welfare of patients and the responsibilities of doctors should want to entertain it as a public policy. Killing is an inherently public matter, and should be recognized as such.
4. Other Jurisdictions
The international consensus is strongly opposed to the active termination of sick, disabled and dying persons. Many eminent bodies have examined the issue.
"Society's prohibition against intentional killing is the cornerstone of law and social relationships. It protects each one of us equally." - Select Committee on Medical Ethics, United Kingdom House of Lords
"We are confronted with a consistent and almost universal tradition that has long rejected the asserted right, and continues explicitly to reject it today, even for terminally ill, mentally competent adults." - U.S. Supreme Court
"Legalizing assisted suicide and euthanasia would be profoundly dangerous for many individuals who are ill and vulnerable." - New York State Task Force on Life and the Law
In 1997 the Australian National Senate repealed a Northern Territory law allowing euthanasia. In the same year, the State of Oregon became the first jurisdiction to statutorily legalize assisted suicide. The Dutch experience suggests that it will not be long before the Oregon experiment unravels. Euthanasia advocates immediately began calling for more permissive measures.
5. Should Changes Be Made to the Criminal Code?
"The care of human life and happiness, and not their destruction, is the first and only legitimate object of good government."- Thomas Jefferson
In recent years Canada's courts and Parliament have seriously examined the question of changing existing prohibitions against euthanasia and assisted suicide. Both decided in the negative and gave numerous reasons which we find compelling.
In 1993 the Supreme Court of Canada rejected Sue Rodriguez' bid to legalize assisted suicide. It said that "the policy of the state that human life should not be depreciated by allowing life to be taken" reflected a legal and societal consensus. It said also that "Given the concerns about abuse and the great difficulty in creating appropriate safeguards, the blanket prohibition on assisted suicide is not arbitrary or unfair."
In 1995 the Special Senate Committee on Euthanasia and Assisted Suicide recommended that Criminal Code prohibitions on active euthanasia and assisted suicide be maintained. Among the reasons which the majority gave:
"In a pluralistic society, respect for life is a societal value that transcends individual, religious or diverse cultural values."
"Legalization could result in abuses, especially with respect to the most vulnerable members of society."
"Changes in the law with respect to competent persons could lead the way to possible changes in the law for incompetent persons."
"The Netherlands experience illustrates that guidelines are not always followed."
"Individual rights must be limited to the extent that they cause harm to other persons."
"Since we are aware of an unacceptably high rate of suicide among young people, especially in the aboriginal community, how can we justify any action that suggests assisted suicide is a legitimate response to suffering? "
Dignity exists when one faces the final stages of life with a feeling of self-worth and with the care, solicitude and compassion to which all human beings are entitled."
" The common good could be endangered if the law is changed to accommodate the few cases where pain control is ineffective."
Compassionate homicide?
Proposals to reduce the criminal offence of euthanasia have been advanced, especially in light of the Latimer case. Some wish to create a new category of "compassionate homicide." For three reasons, it would be unwise public policy to enact this type of provision.
Killing someone is not an act of compassion. Compassionate homicide is an ethically flawed concept,
A separate crime for euthanasia would be discriminatory by (i) depriving the lives of sick and disabled persons of equal protection from murder; (ii) signifying that the lives of sick and disabled persons have less value than others.
Public safety would be endangered. It would unleash an open season
"The real issue is equality. Are disabled people entitled to the same protection of the law as other people?" - Mel Graham, Council for Canadians with Disabilities
"To distinguish between murder and 'mercy killing' would be to cross the line which prohibits any intentional killing, a line which we think it essential to preserve. Nor do we think that 'mercy-killing' could be adequately defined..." - Select Committee on Medical Ethics, United Kingdom House of Lords
"Euthanasia must be called a false mercy, and indeed a disturbing 'perversion
' of mercy. True 'compassion' leads to sharing another's pain; it does not kill the person whose suffering we cannot bear." - Pope John Paul II
Other changes
?Caution is called for concerning proposals to change the Criminal Code in the areas of withholding and withdrawing treatment and the administration of pain relief medication. There is a danger that such changes would bring euthanasia in by the back door.
A lax approach to the omission of life-preserving treatment should be opposed if it would likely result in discrimination against sick or disabled persons, who thus would be intentionally deprived of life. Advocates for the disabled are troubled about existing discrimination in accessing treatment. Care is needed not to greatly exacerbate the problem.
EPC is also concerned about changes that might allow medications to easily be used for inducing death under the guise of pain relief.
6. Summary of Opinion Polls: Canadians do NOT want aid in dying; they want better care in dying.
"These members are skeptical as to the validity of opinion poll results often cited by those witnesses in favour of changes to the existing laws. They are concerned with the acceptance of such poll results at face value without close analysis of the questions asked, and the knowledge of the respondents with respect to the issues polled. Moreover, they have noted the confusion as to the terms used." - Majority view, Special Senate Committee on Euthanasia
Canada faces a serious miscarriage of democracy, if lawmakers are ready to legalize euthanasia because they mistakenly assume that the cultural debate over "mercy-killing" is largely over. Contrary to some superficial polls that have been uncritically reported by many media, there is no public consensus in favour of allowing the killing of sick, dying or disabled persons. Polls that claim otherwise do not withstand serious scrutiny (see Tab 6).
A careful, extensive and in-depth poll of British Columbians by EPC revealed a lack of consensus and much misunderstanding about euthanasia itself, yet a clear consensus in favour of an alternative response to suffering (Tab 6). Some poll highlights:
(1) People do not believe euthanasia is the right solution to suffering.
In the EPC poll the overwhelming majority (71%) agreed with this statement:
"People who want to commit suicide should be helped with their problems, not helped to die by assisted suicide."
(2) There is no consensus in favour of legalization.
The EPC poll clearly defined euthanasia as "deliberately ending another person's life with a pill overdose or lethal injection" and found 53.7% - hardly a consensus - favored legalization. We believe the figure would be even lower among Canadians as a whole. Polls claiming 60 or 70% support typically do not define euthanasia terminology which many people do not accurately understand.
(3) Those most in favour of legalization are the least well informed.
Much of the expressed support for legalization appears to be driven by public confusion about end of life matters. In the EPC poll 67% of those pro-legalization mistakenly defined the refusal of life-prolonging medication or treatment as euthanasia. 56% were not aware of the legal right to refuse such medication or treatment.
(4) People have many doubts about euthanasia.
The EPC poll revealed 80% were concerned that a euthanasia law would not contain adequate safeguards. 86% were concerned that mentally incapacitated persons could be euthanized without full informed consent.
(5) A strong consensus exists in favour of making palliative care a right of all Canadians.
In the EPC poll 81% said the government should "guarantee availability of pain relief programs and palliative care for the terminally ill as an alternative to euthanasia."
The Canadian euthanasia debate is far from over. The real views of Canadians have yet to be really heard. Furthermore, ordinary Canadians have barely begun to have access to the balanced deliberations and clear definitions found in serious studies like the Senate Committee Report. They have not been well served by a certain media tendency to traffic in sensational anecdotes about individual tragedies.
7. DefinitionsGood definitions are essential for a coherent public discussion of the euthanasia issue. The Senate Committee's Report provided helpful definitions of most key terms (Tab 7).
Unfortunately, the Report's definition of the central term -euthanasia- is defectively ambiguous, failing to take account of those decisions to withhold or withdraw treatment that intentionally cause death. EPC's definition, referring to omissions as well as actions, is more complete (Tab 7) and well-founded in both ethics and the law.
8. Euthanasia Prevention Coalition BC
Formed in 1995, the Euthanasia Prevention Coalition of BC is a coalition of organizations and individuals opposed to the legalization of euthanasia (see Tab 8). Members of the coalition believe that euthanasia should continue to be treated as murder, irrespective of whether the person killed has consented.
The Coalition wants to promote serious public debate about euthanasia, and strongly advocates universal access to quality palliative care.
At present 49 diverse medical and community groups belong to EPC. EPC is a member of Care in Dying / The Canadian Coalition Against Euthanasia, based in Ottawa.
The Need for Prudence as Well as Compassion
EPC is deeply concerned about the manipulative haste with which some euthanasia advocates are pressing for legal change. These partisans seem all to ready too traffic in tragic anecdotes about individual cases. Yet they are all too reluctant to demonstrate how the benefits of legalization would outweigh the harm to the common good and the rights of the most vulnerable.
Adeptness at appealing to the fear of suffering is not being matched by zeal for responsible public discussion. Euthanasia proponents would erect medicalized death as one of the columns in our Canadian health care edifice. But what assurances do they offer that patient killing would not result in the roof falling in, ethically speaking, on the entire system?
Right Question. Two Very Different Answers.
The euthanasia issue raises a question Canadians must face: How do we deal with human suffering? But proposals to legalize the killing of those who suffer do not offer the right answer.
Generations of Canadians have worked to build a welcoming and caring environment for all who suffer because they are sick, disabled or dying. Legalized euthanasia or assisted suicide would send the message that some members of our society are better off dead. The public meanings of "compassion", "justice" and "medical care" would all shift in a radical way.
Our medical ability to relieve suffering has never been greater than now. Why would we as a society now want to say, Killing is a cure for suffering?
If we begin to kill those who suffer in order to satisfy the wishes of some, where will it lead? What will it cost us as a people? Will we not end up becoming less and less compassionate toward those who are less able, those who after all inconvenience us by their demands on our energies and resources? Will we, as one advocate for the disabled fears, erect a double standard, offering suicide prevention for the able-bodied, and suicide assistance for the disabled? And where will it all lead?
"Will the right to kill be followed by the duty to kill? - Archbishop Marcel Gervais, Canadian Conference of Catholic Bishops
"It is human to want to end suffering. It is equally human to acknowledge that there are things we cannot do to end suffering without losing a part of our humanity. One of those things is taking a life." - Editorial, Globe and Mail
Should not our basic response to the question of suffering be, Kill the pain, never the patient? Should not the future direction of our country be to muster our best resources to alleviate suffering in an ever more effective way? But if the answer to these questions is yes, public policy changes and determined government action are long overdue. Firm opposition to killing must be matched by vigorous commitment to caring.
List of Appended Documents (Tabs 1-8)
Appendix 1: The Latimer Case
People First of Canada, Statement: Tracy Latimer
Council of Canadians with Disabilities, "Exemption is Wrong"
Haldor K. Bjarnason, Euthanasia for Individuals with Disabilities
Appendix 2: Palliative Care
The Canadian Palliative Care Initiative
"Barriers to the Delivery of Palliative Care in Canada"
Senate Report, "Palliative Care in Canada"
Appendix 3: The Doctor-Patient Relationship
Peter A. Singer, MD, "Should Doctors Kill Patients?"
Herbert Hendin, MD et al., "Physician-Assisted Suicide and Euthanasia in the Netherlands: Lessons from the Dutch"
"Most Frail Elderly Oppose Physician-Assisted Suicide and May be at Odds with Family Members"
"Dutch Euthanasia
"
Appendix 4: Other Jurisdictions
New York Task Force on Life and the Law, When Death is Sought, Executive Summary
"Excerpts: Australian Senate Report"
Recent International Developments
"Next Step: Nonvoluntary Euthanasia?"
Appendix 5: Should Changes be Made to the Criminal Code?
Dick Sobsey, Gregor Wolbring, An Open Letter on Compassionate Homicide: Hard Cases Make Bad Law
EPC, Response to the Senate Report on Euthanasia
Peter Ryan, Review of Senator Sharon Carstairs, Senate Bill S-13
Appendix 6: Summary of Opinion Polls
"British Columbians Want Better Care for the Dying, Not Euthanasia"
1997 BC Euthanasia Poll: Summary of Results
"The 'Euthanasia Poll' That Really Wasn't"
"Canadians Want Care for the Dying, Not Euthanasia"
1997 B.C. Euthanasia Study: Graphs
Appendix 7: Definitions
Senate Report, Terminology Defined
EPC, Definition of Some Key Terms
Appendix 8: Euthanasia Prevention Coalition BC
Euthanasia Prevention Coalition BC: Our Purposes, Our Concerns & Our Membership
Andrew Coyne, "The Slippery Slope That Leads to Death"
Care in Dying / Canadian Coalition Against Euthanasia
EPC, Recommended Resources
Euthanasia Prevention Coalition Activities 1997
Copyright 1999-2001 Euthanasia Prevention Coalition of BC